RARE DISEASE DAY
FEBRUARY 29, 2012
While rare diseases themselves are rare, rare diseases as a whole are not so rare at all. The statistics are unbelievable... Approximately 1 in 10 people are affected by a rare disease!! There are more than 6,000 different types of rare diseases - Niemann Pick Type C is one of those. Alzheimers is also one of these. 95% of rare diseases do not have an approved treatment.
List of Rare Diseases: http://www.hon.ch/HONselect/RareDiseaseAB.html#A
In honor of Kamryn and all other children who have a rare disease, please join us on 2/29/12!
To view the gallery from the HOPE campaign, go to: http://rareproject.org/2012/02/29/hopeitsinourgenes/
To view the gallery from the HOPE campaign, go to: http://rareproject.org/2012/02/29/hopeitsinourgenes/
But those who hope in the LORD
will renew their strength.
They will soar on wings like eagles;
they will run and not grow weary,
they will walk and not be faint .
- Isaiah 40:31
Help Raise Awareness for Rare Diseases by wearing jeans on Rare Disease Day!
- Genes & Jeans.. a natural fit : Pairs – jeans come in pairs - genes come in 23 pairs.
How can you join in raising awareness:
- wear jeans and/or a jean ribbon on rare disease day
- "like" the Global Genes Project on Facebook - www.facebook.com/globalgenesproject
- Tweet @GlobalGenes/ Use: #1Mil4RARE
- Spread the word and encourage others to help raise awareness too.
HOPE... it's in our genes.
http://www.globalgenesproject.org/index.php
Take a moment to participate in this important advocacy initiative for Rare Disease Day 2012. It literally only takes a minute!
http://rarediseaseday.us/
Take a moment to participate in this important advocacy initiative for Rare Disease Day 2012. It literally only takes a minute!
http://rarediseaseday.us/
