Rare Disease Day

RARE DISEASE DAY 

FEBRUARY 29, 2012

While rare diseases themselves are rare, rare diseases as a whole are not so rare at all. The statistics are unbelievable... Approximately 1 in 10 people are affected by a rare disease!! There are more than 6,000 different types of rare diseases - Niemann Pick Type C is one of those. Alzheimers is also one of these. 95% of rare diseases do not have an approved treatment. 

List of Rare Diseases: http://www.hon.ch/HONselect/RareDiseaseAB.html#A

In honor of Kamryn and all other children who have a rare disease, please join us on 2/29/12! 


To view the gallery from the HOPE campaign, go to: http://rareproject.org/2012/02/29/hopeitsinourgenes/

But those who hope in the LORD 

will renew their strength. 

They will soar on wings like eagles; 

they will run and not grow weary, 

they will walk and not be faint . 

- Isaiah 40:31

Help Raise Awareness for Rare Diseases by wearing jeans on Rare Disease Day!

 - 2/29: A rare day - a perfect day to raise awareness for rare diseases!
 - Genes & Jeans.. a natural fit :  Pairs – jeans come in pairs - genes come in 23 pairs.




How can you join in raising awareness:
- wear jeans and/or a jean ribbon on rare disease day
- "like" the Global Genes Project on Facebook - www.facebook.com/globalgenesproject
- Tweet @GlobalGenes/ Use: #1Mil4RARE 
- Spread the word and encourage others to help raise awareness too.

HOPE... it's in our genes.

http://www.globalgenesproject.org/index.php

Take a moment to participate in this important advocacy initiative for Rare Disease Day 2012. It literally only takes a minute!


http://rarediseaseday.us/take-action-now/handprints-on-the-hill/